RESOURCES, WEBSITES, AND APPS | Added: 12, August 2017
What is available on the Internet for me?
There is a wealth of information about diabetes on and off the Internet. Without such resources, the authors could not have done all the research necessary for this book. For people who don’t own a computer or who don’t want to gather their information from the Internet, we offer some contact information and other resources from books, magazines, and organizations about all facets of diabetes.
For Internet users, we list sites that help the general public manage the labyrinth of the what, where, and how of diabetes. Some sites include information about prediabetes, types 1 and 2, and gestational diabetes. There are sites that generously help parents cope with their child’s diabetes diagnosis. There are scientific papers available from the government, universities, institutions, and organizations that go into more scientific details about diabetes. And more recently, there are sites that present studies that may eventually help eradicate diabetes-or at least lessen the number of people with the disease.
Below, you’ll find some of these contacts and more “user-friendly” sites, but don’t be afraid to check out other links. (Although some sites may seem to offer help, the authors generally get their information about diabetes from organizations that specialize in the disease. This is mainly because such groups are the most familiar with educating and helping the public and are up to date on the more recent scientific findings.)
(The authors have made every effort to verify the following sources, but websites, addresses, and phone numbers often change. We apologize for any inconvenience caused by such changes.)
BOOKS AND MAGAZINES
What are some general books that help people who have just been diagnosed with diabetes?
Many books help people who want to understand the nuances of diabetes, especially those who have just been diagnosed. And of course, the list should include this book! The following are other fine sources:
• Cheating Destiny: Living with Diabetes, James S. Hirsch, Mariner Books, 2006. Although this book is somewhat outdated in terms of technology, it is an excellent book that not only tells the story of Hirsch’s own experiences with diabetes but also his young son’s experiences after being diagnosed with type 1. In addition to his personal narrative, Hirsch brings in a great deal of history behind the introduction of insulin and the people who were and are affected by its discovery. He also writes about the realities of diabetes in America and some of the firsthand experiences of the trials and tribulations felt by those who have the disease.
• Mayo Clinic: The Essential Diabetes Book, second edition, Mayo Clinic, Oxmoor House, 2014. This is a comprehensive guide to diabetes by experts from the first and largest integrated, nonprofit group practice in the world.
• American Diabetes Association Complete Guide to Diabetes, American Diabetes Association, fifth revision, 2014. This complete guide to diabetes gives many of the basics behind diabetes, especially for those who have just been diagnosed.
• Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin, Gary Scheiner, Da Capo Press, 2012. Written by a person who has had type 1 diabetes for over a quarter century, diabetes educator Scheiner interprets the ins and outs of having diabetes, along with his personal observations about having diabetes.
What are some books that help parents who have children and/or teens with diabetes?
Several more recent books help parents understand and cope if their child has diabetes. These are only a few fine book sources:
• American Diabetes Association Guide to Raising a Child with Diabetes, Jean Betschart Roemer, American Diabetes Association, 2011. This book is written by a diabetes educator who has intimate contact with diabetes, as she has had type 1 diabetes for over 45 years. The book not only has basic information about diabetes and how to encourage children to take care of themselves with diabetes but also sections on how to cope-and help a child cope-with the diagnosis.
• Raising Teens with Diabetes: A Survival Guide for Parents, Moira McCarthy, Spry Publishing, 2013. A much-needed guidebook for parents-especially as teens and tweens go through not only a diagnosis of diabetes but also natural changes in hormones as they reach puberty. It explains how hormones versus blood glucose levels vary and affect a young person with diabetes. In particular, it also looks at how diabetes can affect social situations, family dynamics, school safety, and even some tougher topics, such as drugs, alcohol, lying, depression, sex, and rebellion, especially in terms of having the disease.
What are some children’s books that explain diabetes?
There are so many books that help children understand what it is like to have diabetes-too many to mention here. The following lists only a few of the more favored ones, many of which are not only good for young children to read but their parents, friends, and teachers also:
• Taking Diabetes to School, Kim Gosselin, JayJo Books, 2004. This book is older, but still has some good information for preschoolers and up. It’s not only informative to a child but also to his or her classmates (a read-aloud book).
• Even Superheroes Get Diabetes, Sue Ganz-Schmitt, Dog Ear Publishing, 2007. Again, an older book, but the concept is great for younger children, especially if they have diabetes or even know someone with diabetes.
• The Great Katie Kate Discusses Diabetes, M. Maitland DeLand, Greenleaf Book Group Press, 2010. This book is for ages six to nine and is a good resource to help children not only understand the disease but also help with their treatments.
• Diabetes and Me: An Essential Guide for Kids and Parents, Kim Chaloner and Nick Bertozzi, Hill and Wang, 2013. Although for kids age eight to twelve, it is also a great resource for parents who have a child with diabetes.
What are some books that explain either type 1 or type 2 diabetes?
There are several recent books that explain some of the factors involved in having type 1 and type 2 diabetes. These are only a few sources:
• The Mayo Clinic Diabetes Diet, written by weight-loss experts from the Mayo Clinic, Da Capo Lifelong Books, 2014. This helpful book is from one of the major clinics in the nation, written for a person diagnosed with prediabetes or diabetes.
• Type 1 Diabetes for People Who Don’t Have It, Lisa Powell, Lulu.com Publishing, 2010. As the book title implies, this is for people who don’t have type 1 diabetes but want to know more-especially for friends, family, and others who want to know more about a friend’s or family member’s challenges with diabetes.
• Taming the Tiger: Your First Year with Diabetes, William Lee Dubois, Red Blood Cell Books, 2009. This is an older book, but it still has some good and valuable insight to a person’s first year with the challenges of type 1 diabetes. Dubois also has type 1 diabetes and has written several other books, columns, and articles on the subject.
• The First Year: Type 2 Diabetes: An Essential Guide for the Newly Diagnosed, Gretchen Becker, Da Capo Press, 2006. Although this is an older book, it has some good tips. For example, it offers an in-depth discussion of type 2 diabetes, along with shorter chapters that are broken down into manageable sections.
• Your Type 2 Action Plan, American Diabetes Association, 2015. This book not only helps with diabetes education but also diet, exercise, and how people with type 2 diabetes can better manage their health.
What are some books that help a person with diabetes eat more healthfully?
Not everyone with diabetes can eat the same foods. To help with dietary decisions and to understand the reasons for a diabetic diet, the following lists only a few of the specialized books available:
• What Do I Eat Now?: A Step-by-Step Guide to Eating Right with Type 2 Diabetes, Patti B. Geil and Tami A. Ross, American Diabetes Association, 2015. This is a good, recent guide to eating, especially for those who have just been diagnosed with pre-diabetes or have diabetes.
• The Prediabetes Diet Plan: How to Reverse Prediabetes and Prevent Diabetes through Healthy Eating and Exercise, Hillary Wright, Ten Speed Press, 2013. This informative book, as it says in the title, offers ways of eating healthfully, along with exercising, to help people diagnosed with prediabetes or who have the potential to develop diabetes.
What are some books that explain the relationship between exercise and diabetes?
Although most exercise-and-diabetes books have much of the same information as an exercise book for people who don’t have diabetes, there are some differences. The following lists a few of those books:
• Diabetic Athlete’s Handbook: Your Guide to Peak Performance, Sheri Colberg, Human Kinetics, 2009. As the title promises, this handbook has a great deal of useful information about how exercise affects a person with diabetes and how to cope with the effects. The author is an exercise physiologist who has had type 1 diabetes since she was four years old. The book not only talks about blood glucose management and workouts but also focuses on special activities not often included in other exercise books, such as ballroom dancing and fencing.
• The “I Hate to Exercise” Book for People with Diabetes, third edition, Charlotte Hayes, American Diabetes Association, 2013. This book gives tips to people with diabetes who have a hard time fitting exercise into their daily routine.
What are some books that explain diabetes in relation to gender?
Although there are not many books that explain diabetes in relation to gender, here are a few worth mentioning:
• The Smart Woman’s Guide to Diabetes: Authentic Advice on Everything from Eating to Dating and Motherhood, Amy Stockwell Mercer, Demos Health, 2012. This book is written by a woman who was diagnosed with type 1 diabetes when she was 14. The book takes personal experiences with diabetes-what Mercer and other women she interviewed experienced-from adolescence to adulthood. She covers many female topics, too, including menstruation and pregnancy.
• A Woman’s Guide to Diabetes: A Path to Wellness, Brandy Barnes and Natalie Strand, American Diabetes Association, 2015. This book helps a woman with diabetes with the day-to-day challenges, as well as how to cope physically, mentally, and emotionally.
• Sex and Diabetes: For Him and for Her, Janis Roszler and Donna Rice, American Diabetes Association, 2007. Although this book is not as new as some, it still carries some interesting topics, such as the physical and emotional ways diabetes can affect a person’s sex life. For example, there is often a connection between erectile dysfunction in men and diabetes (for more about this, see the chapter “How Diabetes Affects the Reproductive System”).
What are some books that explain the technology available for people with diabetes?
Although these books often become a bit out of date-mainly because of new technology-they do give the reader insight as to what technology is available to those who have diabetes. The following are only a few examples:
• Insulin Pumps and Continuous Glucose Monitoring: A User’s Guide to Effective Diabetes Management, Francine R. Kaufman with Emily Westfall, American Diabetes Association, 2012. This book, as the title promises, is a compendium of what is out there in terms of insulin pumps and continuous glucose monitors. It is a good resource for people with diabetes who may not know how or even why such machines are used, along with information about what to know about the technology before a purchase is made.
• Pumping Insulin: Everything You Need to Succeed on an Insulin Pump, John Walsh and Ruth Roberts, Torrey Pines Press, 2012. This book has everything about using insulin pumps from what they are to how to use them for children, while exercising, and when pregnant.
What are some magazines for people who have diabetes?
Several magazines offer information and support for people who have diabetes. The following lists some of them:
• Diabetes Self-Management-This bimonthly magazine for people with diabetes is published by Madavor Media, LLC, 25 Braintree Hill Office Park, Suite 404, Braintree, MA 02184. The magazine can be reached for subscription information at 855367-4813, or via online at http://www.diabetesselfmanagement.com/subscribe/.
• Diabetes Forecast-This monthly magazine is published through the American Diabetes Association. For subscriptions, call 800-806-7801, or subscribe online at http://www.diabetesforecast.org/about-forecast/subscribe.html.
• Diabetic Living Magazine-This periodic magazine is published as a Better Homes and Gardens Special Interest Publication, published by Meredith Corporation. For subscriptions, contact the magazine at 866-261-6866, or if ordering online, link to https://secure.diabeticlivingonline.com/order/?containerName=i63vuri57&psrc=MN_I63VURI57_R3.
WHERE TO FIND DIABETES INFORMATION
Where can a person with diabetes look for education and information about diabetes?
Several groups specialize in diabetes education. The following lists some suggestions, including phone numbers and addresses (along with email and websites)
• To find a Certified Diabetes Educator in a certain region and information about diabetes, contact the American Association of Certified Diabetes Educators at 200 W. Madison St., Suite 800, Chicago, IL 60606, phone: 800-338-3633, at https://www.diabeteseducator.org/.
• The Academy of Nutrition and Dietetics (formerly the American Dietetic Association) has a great deal of information about diabetes and can be reached at 120 South Riverside Plaza, Suite 2000, Chicago, IL 60606, phone: 800-877-600, at website: http://www.eatrightpro.org/.
• The American Diabetes Association also maintains a hotline for diabetes questions, including information and education, via phone number 703-549-500, or toll-free: 800-342-2383. The association can also be reached at 1701 N. Beauregard St., Alexandria, VA 22311, and at the website http://www.diabetes.org.
• NIH/National Institute of Diabetes and Digestive and Kidney Diseases has a great deal of information about diabetes. The offices are at Office of Communications & Public Liaison, Bldg. 31, Room 9A06, Bethesda, MD 20892-2560, phone: 301-496-3583, website: http://www2.niddk.nih.gov.
How can a person with diabetes find information about diet?
Most health care professionals will have a person on staff, or at a local health care facility, to help diabetics determine the best diet. If the doctor cannot suggest someone on his or her staff, then try the local hospital, as many hospital dietitians are trained to educate not only people with such conditions as heart disease but also diabetes (which often goes hand in hand with heart disease).
Following the best diet for a person with diabetes can be difficult, but there are many groups that help with such a task. The following lists two places to learn about diabetes and diet:
• The Academy of Nutrition and Dietetics (formerly the American Dietetic Association) offers help to find a dietitian at 120 S. Riverside Plaza, Suite 2000, Chicago, IL 60606, phone: 800-877-600, at http://www.eatrightpro.org/.
• The American Diabetes Association has a good deal of information about eating and diabetes. The ADA can be contacted at 703-549-500, or toll-free: 800-342-2383. It can also be reached at 1701 N. Beauregard St., Alexandria, VA 22311, and at web-site http://www.diabetes.org.
DIABETES ORGANIZATIONS AND FACILITIES
What is the Joslin Diabetes Center?
The Joslin Diabetes Center in Boston is named after one of the researchers once at the forefront of diabetes research, Elliot Joslin (1869–1962; for more about Joslin, see the chapter “Introduction to Diabetes”). It is also considered the world’s largest diabetes research center, as well as a diabetes clinic and provider of diabetes education. The center also notes that it has the world’s largest team of board-certified physicians treating diabetes and its complications, along with the largest staff of certified diabetes educators in the world. It can be found at http://www.joslin.org/.
What is the Latino Diabetes Association?
The Latino Diabetes Association offers education and diabetes-awareness information, especially for Latinos. It was organized in response to the increase in type 2 diabetes and obesity within the Latino population-both in young people and adults. Although it is mostly aimed at Latinos in California, it offers some good educational material for everyone. It is found at http://lda.org/.
What is the Barbara Davis Center for Childhood Diabetes?
The Barbara Davis Center for Childhood Diabetes is located at the University of Colorado’s School of Medicine. It has one of the world’s largest diabetes programs specializing in type 1 diabetes research and care. This is also one of the centers involved in clinical trials on how alpha-antitrypsin affects those with type 1 diabetes. (For more about the studies involving alpha-antitrypsin, see the chapter “The Future and Diabetes.”) It can be found at http://www.barbaradaviscenter.org/.
The Joslin Diabetes Center in Boston is the world’s largest research center of its kind.
What is the Diabetes Prevention Support Center?
The nonprofit Diabetes Prevention Support Center was established in 2006 at the University of Pittsburgh with the major goal of preventing diabetes and improving cardiovascular health. It was created through partnership with the military, and support from the Department of Defense, to supply such information to the military and the public. It also has a multimonth, group-based behavioral lifestyle-intervention program, called the Group Lifestyle Balance (GLB), which helps individuals 18 or older who are non-diabetic and overweight, prediabetic, or have metabolic syndrome. The GLB offers education, encouragement, and the tools necessary to help these people-and others, especially those at risk of developing diabetes-to reach and maintain a healthful lifestyle. It can be found at the website www.diabetesprevention.pitt.edu/index.php.
What is the Diabetes Research Institute?
The Diabetes Research Institute (DRI) is located at the University of Miami in Miami, Florida. This group is very active in the its project DRI BioHub, in which researchers are developing a kind of mini-organ to mimic the pancreas and restore insulin production in people who have diabetes. (For more about the DRI BioHub, see the chapter “The Future and Diabetes.”)
What are some diabetes organizations in the United Kingdom?
The Independent Diabetes Trust (www.iddt.org) is an organization from Northampton, England, that specializes in helping those with diabetes. It has a hotline for questions and many publications to help people with diabetes understand the challenges of the disease. There is also the Diabetes Research & Wellness Foundation at https://www.drwf.org.uk/, a charity that raises awareness of diabetes, especially its complications, treatment, prevention, and relief. Diabetes UK at https://www.diabetes.org.uk/ is the United Kingdom’s largest diabetes charity that not only offers information and up-to-date research reports to those with diabetes but also lobbies the government for help to improve conditions for people with diabetes.
What is the IDF Diabetes Atlas?
T he International Diabetes Federation (IDF) Diabetes Atlas enables the Internet user to see where people with diabetes are distributed in different countries, with an emphasis on adults with diabetes ages 20 to 79. The first edition was published in 2000, and the seventh edition was published in 2015. It can be found at www.diabetesatlas.org/across-the-globe.html. There is one caveat that even the IDF mentions: Not all the data is known; for example, in Africa, the IDF estimates that more than two-thirds of the African people with diabetes are undiagnosed. (For more about international statistics and diabetes, see the chapter “Introduction to Diabetes.”)
Are there diabetes organizations in Canada?
There are a few diabetes organizations in Canada, many of them local. But the major organization is the Canadian Diabetes Association at http://www.diabetes.ca/. This group is similar to the American Diabetes Association, offering information and support to Canadians who have diabetes (and others, too-the website also has the basics of diabetes).
What are some diabetes organizations in other countries?
There are a number of diabetes organizations around the world (not including the United States, Canada, or the United Kingdom). The following lists only a few of the most-followed websites of those groups (for a good list of many organizations in other countries, link to Diabetes Monitor’s site at http://www.diabetesmonitor.com/resources/international-diabetes-organizations.htm):
DiabetiCool-This Spanish-language site is all about education and diabetes awareness. It can be found at http://www.diabeticool.com/.
The International Society for Pediatric and Adolescent Diabetes-This is an organization that often sets standards for people with diabetes, especially in terms of averages for such levels as HbA1C (or A1C). It can be found at https://www.ispad.org/.
European Association for the Study of Diabetes-This group’s main goal is to encourage and support research in diabetes, along with disseminating the information in a timely fashion. (An offshoot of this group is the European Foundation for the Study of Diabetes, a nonprofit group supporting research in diabetes.) The association can be found at http://www.easd.org/index.php?option=com_content&view=featured&Itemid=435.
World Diabetes Foundation-This group seeks, in its own words, to “alleviate human suffering related to diabetes and its complications among those least able to withstand the burden of the disease.” It can be reached at the website http://www.worlddiabetesfoundation.org/.
KIDS AND DIABETES ON THE INTERNET
What are some of the best websites to help children deal with diabetes?
Many websites offer information for children dealing with diabetes. For example, Children with Diabetes, at http://www.childrenwithdiabetes.com/, is a site that calls itself an “online community for kids, families, and adults with diabetes.”
Are there any digital books that help children who have diabetes?
Yes, there are many digital books that help children who have diabetes (including those in print form listed above). For example, the companies Lilly and Disney (http://www.lillydiabetes.com/lillydisney.aspx) have collaborated on books that reach children and tweens living with type 1 diabetes. In one series for young children, familiar Disney characters such as Mickey Mouse have a friend Coco, a “funloving” monkey who has type 1 diabetes. In the tweens series, the books explore how diabetes can affect relationships with peers and adults at school, at home, and in sports.
There are many books and websites that are aimed at helping children with diabetes.
Is there a government publication that helps school personnel aid students who have diabetes?
Yes, the government publication Helping the Student with Diabetes Succeed: A Guide for School Personnel, by the National Diabetes Education Program, is a helpful reference not only for school personnel but also for parents and students in understanding diabetes and the law behind caring for students at school. (According to the website, “This comprehensive resource guide helps students with diabetes, their health care team, school staff, and parents work together to provide optimal diabetes management in the school setting.”) The newest edition was published in late 2016 (online only; the print version is from 2012) and can be found at https://www.niddk.nih.gov/healthinformation/health-communication-programs/ndep/healthcare-professionals/schoolguide/Pages/publicationdetail.aspx.
LARGE-SCALE DIABETES STUDIES ON THE INTERNET
What is EPIC-InterAct?
EPIC-InterAct is the world’s largest study of onset type 2 diabetes. The InterAct consortium actually has a case study “nestled” within the existing large EPIC study; the EPIC study itself includes 350,000 participants across ten European countries. The biggest strength of the study is that the results represent standardized dietary and physical activity information collected across the countries and provide baseline data for participants. There are also DNA samples that have been extracted and genotypes, along with plasma samples analyzed for nutrition markers. Each participant was followed for an average of eight years, which is equivalent to four million “person years.” Of the population during the time studied, about 12,403 individuals (in eight countries) were identified as having developed type 2 diabetes. This has been a boon for researchers, as the study data includes genetic and lifestyle observations, along with nutritional factors and physical activities of the participants, for comparison purposes in the study of the development of type 2 diabetes. The website is at www.inter-act.eu.
What doll company is helping children cope with type 1 diabetes?
The doll company that is helping children with type 1 diabetes cope a little better is American Girl (http://play.www.americangirl.com/play), which has introduced a diabetes-care kit for dolls. The kit has ten make-believe items, including a blood-sugar monitor, lancing device, a vial of pretend glucose tablets, a medical bracelet, an ID card, logbook and stickers, a carrying case, and even an insulin pump that can be clipped to a doll’s waistband with an adhesive to attach the infusion set. For dolls not using a pump, an insulin-injection pen needle is also supplied.
This was not just a company ploy. A young girl who had type 1 diabetes started an online petition asking American Girl to make the accessories for dolls. After she had gathered around 7,000 signatures, the company came out with the diabetes kit. Although some people still remain skeptical of the idea, it has helped more than hindered. And it is definitely a way for young people with diabetes to educate more people-young and adult-on the trials and challenges of having the disease.
What is the Diabetes Research Connection?
The Diabetes Research Connection (DRC) is a way of connecting young researchers with donors in order to fund research on the prevention and cure of type 1 diabetes. The DRC was established in 2012 by five people interested in type 1 diabetes-three are scientists with concentrations in diabetes and two are non-scientists who have had type 1 diabetes for years-so all of them have a more personal interest in the disease. As of this writing, the DRC grants up to $50,000 a year for each research project. The website is at https://diabetesresearchconnection.org/.
What was the Diabetes Prevention Program, or DPP?
The DPP, or Diabetes Prevention Program, was a large, multiorganizational research study funded by the U.S. government’s National Institutes of Health (the results were reported in 2002). The study showed that making healthful lifestyle changes could reduce the risk for developing (or slowing down for some with more of a predisposition to) mainly type 2 diabetes.
What is the Blue Circle Test?
In order to better understand a person’s risk for developing diabetes, the International Diabetes Federation (IDF) developed the Blue Circle Test (http://www.idf.org/worlddiabetesday/bluecircletest). Users click on the small circles surrounding a central question mark and choose the appropriate response in describing their status. Once the information is submitted, a report is generated indicating an individual’s risk for developing diabetes. The blue circle is considered (by the IDF, which owns the rights to the blue circle for diabetes) to be the universal symbol for diabetes. The IDF chose the circle as it frequently occurs in nature and has been used by various cultures for centuries with a positive connotation and significance. The color blue represents the color of the sky and the flag of the United Nations. The icon was developed in response to the passage of United Nations Resolution 61/225 on December 20, 2006-“World Diabetes Day.” This resolution was in response to what researchers have deemed a “diabetes epidemic” that they believe will eventually overwhelm health care resources all over the world.
DIABETES EDUCATION ON THE INTERNET
What is the Living Textbook of Diabetes?
The Living Textbook of Diabetes is truly a textbook of diabetes, presenting some of the basics as well as further details about diabetes. It presents itself as an “open-access, peer-reviewed, unbiased, and up-to-date knowledge base.” It is written in an easy-to-follow format. The user can either join the site or register as a guest. It can be found at http://www.diapedia.org/.
Do any online magazines (e-zines) feature information about diabetes?
Yes, several online magazines feature diabetes, and many of them are associated with print magazines. The following lists some of the more well-known e-zines:
• http://diabeticlivingonline.com/-This site, called Diabetic Living, is affiliated with Diabetic Living Magazine published by Meredith Corporation. It offers the same information as the print magazine but with more up-to-date news and information for people with diabetes.
• http://www.diabeticlifestyle.com/-Diabetic Lifestyle is an e-zine that offers information to people with diabetes, including the basics of diabetes, daily living with diabetes, and recipes.
• http://www.diabetesmonitor.com/-Diabetes Monitor is an e-zine that offers a good cross-section of information about diabetes, including downloadable guides to diabetes and up-to-date news about research in the field.
• http://diabetesdigest.com/-Diabetes Digest, from OmnichannelHealth Media, offers basic information about diabetes, along with recipes, free offers, and discounts for people who have diabetes.
• https://www.diabeteshealth.com/-Diabetes Health is an e-zine that offers resources and information to those who have just been diagnosed and those who have had diabetes for years.
What websites concentrate on how genes affect a person with diabetes?
Because there often seems to be some genetic component to a person’s developing diabetes, several websites educate the public about genes and diabetes.
• Diabetes Genes provides information for patients and professionals on research and clinical care in genetic types of diabetes-their website is at http://diabetesgenes.org. (For more about genes and diabetes-such as MODY, monogenic diabetes, and neonatal diabetes-see the chapter “Types of Diabetes.”)
• Genetic and Rare Diseases (GARD) Information Center, PO Box 8126, Gaithersburg, MD 20898-8126, phone: (301) 251-4925, toll-free: (888) 205-2311, website: http://rarediseases.info.nih.gov/GARD/.
What are some websites that help a person with diabetes plan for an emergency?
Many websites offer emergency plans for people with diabetes. The following lists some of the more well-known ones:
• The Centers for Disease Control and Prevention’s site on emergency preparedness for people with diabetes is at www.cdc.gov/diabetes/living/preparedness.html.
• The American Diabetes Association lists some tips for dealing with an emergency for people with diabetes at www.diabetes.org/living-with-diabetes/treatment-andcare/medication/tips-for-emergency-preparedness.html.
• For information on how to store insulin during an emergency, the Food and Drug Administration (FDA) has a site called “insulin storage and switching between products in an emergency” at www.fda.gov/Drugs/EmergencyPreparedness/ucm085213.htm.
What are some websites that offer dietary information to people with diabetes?
Many websites offer dietary help for people who have diabetes. The following lists some of the more well-known ones:
• National Institute of Diabetes and Digestive and Kidney Diseases has a great site to help people with diabetes eat more healthfully by breaking the topic down into guidelines on what to eat, when to eat, and how much to eat. It can be found at https://www.niddk.nih.gov/health-information/diabetes/diabetes-diet-eating.
• The Joslin Diabetes Center offers information about carbohydrate counting, a method often used by people with diabetes to keep track of eating and their blood glucose levels. The center also offers its own Diabetes Food Pyramid, similar to the old USDA food pyramid, which categorizes food according to carbohydrate content. It can be found at http://www.joslin.org/info/know_your_food_groups_with_diabetes.html.
• There are e-zines for people with diabetes who want to cook more healthfully. These include Diabetic Gourmet Magazine, which was started in 1995 and is now sponsored by CAPCO Marketing, New York. It can be found at http://diabeticgourmet.com/.
• The American Diabetes Association also offers information about eating for people with diabetes, including recipes and meal planners, found at http://www.diabetes.org/food-and-fitness/food.
• The Mayo Clinic also offers a plan for eating, including basic information about recommended foods for people with diabetes. It can be found at http://www.mayoclinic.org/diseases-conditions/diabetes/in-depth/diabetes-diet/art-20044295.
• Medline Plus, a website from the National Institutes of Health, offers information about diabetes, diet, and nutrition at https://medlineplus.gov/diabeticdiet.html.
• Among other offerings, the Diabetes Teaching Center in San Francisco has a good educational site, including information about diet, nutrition, and food exchanges, at https://dtc.ucsf.edu/.
Are there websites that help a person with diabetes exercise?
Yes, several websites include information about how people with diabetes can best exercise. The following are some of the more well-known ones:
• The Joslin Diabetes Center offers information about how a person with diabetes can remain physically active, including articles with tips about exercise and even videos. It can be found at http://www.joslin.org/info/diabetes-and-exercise.html.
• The American Diabetes Association has a great website highlighting keeping physically active if a person has diabetes, including types of activities and how to stay safe and healthy while exercising. It can be found at http://www.diabetes.org/food-andfitness/fitness/.
• For understanding how to cope with excessive heat and humidity when a person with diabetes is outdoor exercising (heat can raise blood sugar levels and leave a person dehydrated), see the National Weather Service’s heat safety page at http://www.nws.noaa.gov/os/heat/.
What websites help people with diabetes keep track of their daily blood glucose levels?
Several websites can help with tracking daily blood glucose levels. The following lists only a few (for more about keeping track of glucose, see the apps section of this chapter):
Are any websites associated with television programs?
Yes, there are some websites for people with diabetes that are associated with television programs. For example, dLife, run by LifeMed Media, Inc., includes not only information about diabetes, diabetes apps, and recipes but also dLifeTV, the only web series dedicated to people with diabetes (it airs Sundays on dLifeTV.com, as of this writing, 7 P.M. Eastern Time, 4 P.M. Pacific Time). It can be found at http://www.dlife.com/.
Sugar Stats-This free website helps keep track of blood sugar levels at www.SugarStats.com.
MyNetDiary Diabetes Tracker-This is a pay-for website, but it does help a person with diabetes keep track of blood glucose levels through a computer or an app (see below for more apps). It can be found at http://www.mynetdiary.com/diabetes.html.
What websites can help keep track of medications-diabetic or otherwise?
Several websites, many of them free, can help keep track of a person’s medications-diabetic or otherwise. The following lists only a few:
MedCoach-This free website can be used to track blood glucose readings and other medications, found at www.medcoach.com.
MedSimple-This is also a free website that offers medication tracking, including blood glucose readings and diabetic medicines, found at www.medsimpleapp.com.
My Medicine Tracker-Another free website that can be used to keep track of diabetic medicines or other medications, found at www.mediguard.org.
What are some websites that offer free diabetes risk assessment online?
Numerous websites offer free diabetes risk assessment online to “predict” the chances of a person’s developing diabetes. (Note: Although these sites are interesting to try, they are based on statistical data on other people with diabetes; if a person suspects he or she may have diabetes, then it is best to be tested by a health care professional.)
American Diabetes Association-One of the easiest and simplest to use (and it’s free) is from the American Diabetes Association’s site. To take the risk assessment test, go online to www.diabetes.org. The test asks simple questions, such as about weight, age, family history, and other characteristics. If a person decides to take the risk assessment via phone, then he or she can call 1-800-DIABETES (1-800-342-2383; yes, there is an extra letter for a phone number-“S”-but just drop that number, which would be 7).
Diabetes Forecast-Another site is sponsored by the Diabetes Forecast publication (see magazines above) and is a similar assessment to the one offered by the American Diabetes Association. See http://www.diabetesforecast.org.
National Institutes of Health -The government has a risk-assessment test for seeing whether a person is at risk for developing type 2 diabetes. It is free to use at https://www.niddk.nih.gov/health-information/health-communication-programs/ndep/am-i-at-risk/diabetes-risk-test/Pages/diabetes-risk-test.aspx.
Cleveland Clinic Foundation-This group has a simple, free risk-assessment test. It can be found at http://www.clevelandclinic.org/health/interactive/diabetes.asp.
What are some websites that help a diabetic find a dietitian?
Many websites help a diabetic person find a dietitian in his or her local area. The following lists several of the best places to learn about diabetes and diet:
• The Academy of Nutrition and Dietetics (formerly the American Dietetic Association) can help people with diabetes find a dietitian at http://www.eatrightpro.org/.
• There are also websites that offer a dietician professional in a person’s area. For example, HealthProfs.com at https://www.healthprofs.com/cam can search a person’s state for a dietitian who specializes in diabetes.
Are any special days, weeks, or months set aside for diabetes awareness?
Yes, there are several days and periods-depending on the organization sponsoring the event-set aside for diabetes awareness. The following lists some of those days, weeks, and months:
American Diabetes Association Alert Day-This is usually celebrated on the fourth Tuesday in March and is when the association urges people to take the type 2 Diabetes Risk Test. The test includes simple online questions, such as about age, gender, family history, weight, race, and ethnicity. It is used to help people realize not only the risks of type 2 diabetes but also to assess their own possible risk factors. Go to http://diabetes.org/risktest (or call 1-800-342-2383, or 1-800-DIABETES).
Participants hold up the blue circle symbol during a World Diabetes Day event. World Diabetes Day is held on November 14, the birthday of insulin co-discoverer Frederick Banting.
National Diabetes Month and Diabetes Awareness Month-November is National Diabetes Month, and according to the National Institutes of Health, the reason is “so individuals, health care professionals, organizations, and communities across the country can bring attention to diabetes and its impact on millions of Americans.” Each year has a different theme. (Find out more at https://www.niddk.nih.gov/healthinformation/health-communication-programs/ndep/partnership-community-outreach/national-diabetes-month/Pages/default.aspx). November is also considered Diabetes Awareness Month in many parts of the world in an effort to raise diabetes awareness.
World Diabetes Day-World Diabetes Day was started in 1991 by the International Diabetes Federation and World Health Organization in response to the increased number of people around the world who are developing diabetes. It is held on November 14 each year. More information can be found at http://www.idf.org/wdd-index/.
American Diabetes Association’s Tour de Cure-According to the ADA, the Tour de Cure involves thousands of people across the United States who ride to support diabetes research. More information can be found at http://tour.diabetes.org/ (or call 1-800-342-2383, or 1-800-DIABETES).
What are some organizations that train dogs to help people with diabetes?
Many organizations train dogs to help certain people with diabetes. Not everyone is a candidate for such an animal, nor is every dog a candidate to be trained, but there are several groups that can help educate people with diabetes about the possibilities. The following lists only some of those groups found on the Internet, with several linking to upto-date information on their Facebook pages from their websites (for more information about dogs and people with diabetes, see the chapter “Taking Charge of Diabetes”). Please note that because such dogs are specially trained, many organizations have a long waiting list:
Diabetic Alert Dogs of America-DADA is a group that provides dogs and training, along with education about such animals; at www.diabeticalertdogsofamerica.com.
Dogs 4 Diabetics-This group has a very long waiting list and is mostly run by donations it receives; at http://dogs4diabetics.com.
Canine Assistance, Rehabilitation, Education, and Services (CARES)-This group provides diabetes alert dogs but, again, has a very long waiting list; at http://www.caresks.com.
Diabetes Alert Dog Alliance-This group has a listing of possible qualified trainers around the country; at http://www.diabetesalertdogalliance.org.
There are other places to investigate, too, including local adoption agencies such as the Society for the Prevention of Cruelty to Animals (SPCA) and the Humane Society. One group even offers training workshops around the country for people who want to train their own diabetes alert dogs (at www.Diabeticalertdoguniversity.com). Books and videos are also available, but be forewarned: Not all dogs qualify, and it may take a year or more to train a dog to become a diabetes alert dog.
U.S. GOVERNMENT HELP ON THE INTERNET
How is the Americans with Disabilities Act involved with diabetes?
The Americans with Disabilities Act (ADA) is a federal law enacted in 1990 (amended in 2008; in effect in 2009) that protects people with disabilities from discrimination. Under this law, diabetes can be considered a disability. Details about the ADA can be found at https://www.ada.gov/.
Are there any government websites that offer educational material for people with diabetes?
Yes, many government websites do. Here are some of the more well-known sites:
Centers for Disease Control and Prevention (CDC)-This site, supported by the government as part of the U.S. Department of Health and Human Services, helps disseminate information about the basics of diabetes with plenty of up-to-date information. It also has educational information for people-children to adults-about diabetes, including the basics, statistics, and programs to help prevent diabetes. It can be found at http://www.cdc.gov/diabetes/home/.
CDC Registry-This site provides a national registry of recognized diabetes-prevention programs. It lists contact information for all CDC-recognized organizations that have type 2 diabetes-prevention programs in communities across the United States. (All of these programs have agreed to use a CDC-approved curriculum.) It can be found at https://nccd.cdc.gov/DDT_DPRP/Registry.aspx.
National Diabetes Education Program (under the Department of Human Health and Services’ National Institute of Diabetes and Digestive and Kidney Diseases)-This site has a great deal of information, not only for the public, but also for health care professionals, found at https://www.niddk.nih.gov/health-information/health-communication-programs/ndep/Pages/index.aspx.
The National Institute of Diabetes and Digestive and Kidney Diseases Health Information Center-This center offers the public information, education, and the latest news about diabetes. It can be found at https://www.niddk.nih.gov/health-information/diabetes.
The Genetic and Rare Diseases (GARD) Information Center-This center offers information on genetics and disease, including information on diabetes connections. It is at http://rarediseases.info.nih.gov/GARD/.
What is the U.S. government’s TrialNet program?
There is some help from the U.S. government when it comes to screening family members of people with type 1 diabetes and latent autoimmune diabetes in adults (LADA). The government-funded TrialNet program screens family members of people with the disease by measuring blood samples for auto-antibodies, which are considered to be strong indicators of someone’s developing type 1 diabetes. Family members of type 1/LADA diabetes can also find information. (For more about type 1 diabetes and LADA, see the chapter “Prediabetes and Type 1 Diabetes.”) See https://www.diabetestrialnet.org/.
Are there any free smartphone apps that help a person with diabetes?
Yes, there is a plethora of apps that help people with diabetes-too many to mention here (and more are being added every year, sometimes every month). The following lists some of the more well-known free and pay-for apps:
Glucose Buddy-This app tracks glucose readings, checking the daily highs, lows, and averages and presenting them on a graph. This feature allows users to understand trends as they go through the day and week. There are even more features on the web version. This is free and available for Apple and Android devices. It can be found at http://www.glucosebuddy.com/.
Gomeals-This app tracks restaurant offerings, listing carbohydrates and nutrition for menu items. It does this using GPS technology on smartphones, determining a person’s location and showing menus for restaurants in the immediate area. It is free for Apple and Android devices. It can be found at https://www.gomeals.com/.
Fitter Fitness Calculator-For those interested in keeping their weight down or losing weight-especially if they have diabetes or are prediabetic-this app keeps track of a person’s body mass index (BMI) and weight loss. It is free for Apple devices. (For more information about BMI, see the chapter “Diabetes and Obesity.”) The app can be downloaded through iTunes, Google Play, and several other places on the Internet.
Diabetes Companion-This app, from mySugr, helps people with diabetes keep track of their blood glucose levels. Users enter information about the foods they’re eating, how they’re feeling, what activities they’re doing, etc. The app then plots a graph, giving a seven-day average of how many hypo- and hyperglycemic episodes the person may have had; it even allows the person to print out the information for a health care provider. It can be found at https://mysugr.com/apps/.
Are there any pay-for smartphone apps that help a person with diabetes?
Yes, there are many pay-for smartphone apps that help people with diabetes-again, too many to mention here (and more are frequently added). The following lists some of the more well-known ones:
Diabetes App-This app, put out by BHI technology, costs $6.99 at this writing and is available only for Apple devices. It tracks a person’s carbohydrates consumed and holds such information as medications, activity, glucose readings, nutritional data, and weight. It can be purchased from iTunes.
Sparkpeople-This app is for Apple and Android devices and costs $3.99; for Black-Berry users, it is free. It is actually a diet and food tracker, so a person can keep track of calories, carbohydrates, protein, fats, weight, and blood glucose levels to help control blood glucose highs and lows. Information can be found at http://www.sparkpeople.com/mobile-apps.asp.
Calorie King-This app is from Calorie King Food Search and is free for Apple devices. There are also two other food apps, including Calorie King ControlMyWeight Calorie Counter ($4.99 for Apple devices) and Calorie King Create-a-Meal, which is free for Android devices. It is a good way to count calories and carbohydrates at a restaurant or to interpret food labels-giving a person with diabetes better control of blood glucose levels. It can be found at http://www.calorieking.com/.
Little Bytes Software-This company has a pay-for diabetes tracker that allows a person with diabetes to keep track of blood glucose levels via phone. It can be found at http://www.littlebytes.mobi/ (and sold in the Google Play store).
What way of monitoring blood glucose levels came on the U.S. market in 2016?
In 2016, the Food and Drug Administration approved the sale of the Dario Blood Glucose Monitoring System, advertised as an “all-in-one” glucose meter. The unit, on sale in Europe since 2013, was developed by LabStyle Innovations Corporation of Israel and has a built-in lancing device, a meter, and test strips. It never needs a battery and uses a person’s cell phone (iPhone or Android smartphones) to monitor blood glucose levels. Taking only six seconds for the process, the unit plugs into the cell phone’s headphone socket, with an app automatically syncing with the meter. It also stores the data for reference in the future and allows the person to share the results of the monitor with anyone via phone. Overall, it is a good way for a person who needs to keep close track of blood glucose levels, especially in terms of how insulin and carbohydrates may affect the person while he or she is away from home.